URGENT - Support needed - Leona Anderson, MS

Please do not post "comment" to this but email Leona at admissions123@gmail.com

Here is Leona's story:

My name is Leona Anderson. My husband has been diagnosed with Arachnoiditis. This journey started with back surgery for spinal stenosis on November 4, 2008. He came home the same day after surgery. For two weeks he felt like a new man. Sunday night before Thanksgiving, he was feeling really tired and weird. He went and laid down and to adjust himself on the bed, he pushed himself up on the bed with his right foot and felt a pop on his lower right back side with excruciating pain that radiated to the front. He could not sit, stand or lay down without pain. He was rushed to the ER. They got him out of pain and sent him home.We went back to the neurosurgeon who preformed the surgery only to be told he didn't know what was wrong. He sent him to a General Surgeon and a Urologist. Of course, they didn't understand why they were seeing him. He has been back at the ER two more times since then. The latter he was admitted to the hospital because his was in so much pain he passed out and and had a seizure. He had a sever headache and after I called the doctors attention to the headache they decide to do a CT scan. The scan revealed a subarachnoid hemorrhage.The doctors then diagnosed him with Arachnoiditis. The doctors we are dealing with are not that familiar with this disease. They do not know what caused this to happen. Before they found this hemorrhage they were going to treat him for Chronic pain. We are just getting the run around. We are now home after a month stay in the hospital and inpatient Rehab. His medication consist of Nimidopine which he finished on May 16, 2009, Depakote, valium, neurontin, vitamin C and perocet when needed for severe pain. He is going to Physical Therapy for three days a week for an hour. He can't laugh, cough, sneeze or bend with out lightning pain shooting through him. We go back to the neurosurgeon on May 28. Could you give me some questions I need to ask? My husband is not aware of the severity of his disease. He is still recuperating from his stay in the hospital. If you have any advise you could give would be greatly appreciated.I am thankful I have found your website. I was feeling all alone in dealing with this. He has some good days but says he is always hurting. His pain is about a 5 every day. He is not working right now. He is on short term disability. We are hoping he will be able to return to work. I like the idea of maybe he will be able to treat his pain with out narcotic drugs. If you are able to direct me in the direction I need to be able to accomplish this for him it well be greatly appreciated. Thank you for taking the time to read my email. I look forward to hearing from you. Leona Anderson admissions123@gmail.com