Monday, April 20, 2009

Conference in Ottawa, Ontario - Canadian Organisation for Rare Disorders

From Louise Carbonneau Vermeiren:

Please see: http://www.arachnoiditiscanada.com/.

I believe that we (arachnoiditis sufferers) must link with each others so we can make an impact on the medical profession to stop invasive procedures. We are scattered all across the world, incapable of moving forward or being acknowledged and heard.

****Louise will be a guest speaker at the conference in Ottawa, Ontario at the Canadian Organisation for Rare Disorders in May 1-2. The web address is www.cord.ca. You can peruse the agenda. Louise is scheduled to speak May 1 at 2:30pm with only 15 minutes, so time is of the essence. She will be introducing arachnoiditis to researchers. doctors, pharmaceutical companies.

All are invited to attend as well. It is open to the public. The more arachnoiditis patients, the more impact we will make. There is a movement on the internet to work towards awareness.

Louise writes: "I hope you will be willing to accept my membership and join our efforts to make a difference. " To Louise, I say, WELCOME!!!

From Karen Kovacik:

Dear friends, there is hope. We are going to whip this thing! Hang in there. STAND UP & FIGHT, fight as hard as you know how ...... buy that time you need. If you need help to stand up and fight, just reach out your hand to one of us. We love you.

Karen Kovacik, Co-Founder
Life With Arachnoiditis

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