Please welcome Kay of the UK. Her email address is teambiscuit@hotmail.com and she welcomes your email. Kay's mother has arachnoiditis and multipe sclerosis.
Kay says:
"My mother is a powerhouse - despite the pain, refuses to take any painkillers unless really bad! We always say (behind her back!) that by rights she should be at least wheelchair bound by now but her stubborness is keeping her going! Utterly respect how she tackles her conditions but I want to be able to offer more support as we get older and be able to provide feasible suggestions for things to try in treating it (given the NHS here in the UK couldn't care less). Would like to know more about developments in treatment and also tips from other people who have both these conditions on how they cope!
Also, when I spoke to my physio about her condition he immediately said he would never be able to do work that involved her spine directly as the MS made it too risky and would have to concentrate on keeping strength in her legs etc - she herself has been turned away by 2 different physios who refused to treat her because of the MS, let alone the arachnoiditis! Is this what other people have experienced? And can anyone recommend proactive physiotherapists in the UK who have experience in working with these conditions?
Many thanks for your time!"
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment