Please welcome Carrie Trompeter of Kansas. Her email address is carseat@sunflower.com and she welcomes your email. Carrie has a failed L5-S1 spinal fusion and undiagnosed arachnoiditis.
Carrie says:
"I have intractable pain from multiple mid/low back ESIs, myelograms, discograms, & CT scans/an MRI/a bone scan with dyes over the last two years. I need to find a specialist in the Kansas City, KS or Kansas City, MO metro area since my "pain specialist" does not think i have any problems but pain from failed spinal fusion surgery. Even though every procedure he did on me caused increase in pain and symptoms. Should I seek a Rheumatologist, or a Neurologist for the appropriate tests to find out if I have arachnoiditist? Should I try my family Dr. even though he works with my pain specialist? Any suggestions? Carrie"
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Sorry to hear about all her problems but the appropriate tests to find out of you have arachnoiditis is an MRI. After my surgery for L5/S1 Spondy, which went great, follwed by a year of PT, I was close to going back to work when I started having some problems similar to what sent me to the docs in the first place. They sent me for the MRI and there was the arachnoiditis clear as day and barely 10 months post op. I live in the area just North of Kansas City and have arachnoiditis and have a doctor that I see in the Overland Park area that I have been seeing now for the better part of 5 years and have never felt like "just a patient." My doc takes care of the whole you and then some and makes sure that your pain is managed so that you have a quality of life. I will be happy to pass along the information to Carrie in an email later this evening and hopefully she will be able to get in and see my doctor at some point.
ReplyDeleteHi Carrie,
ReplyDeleteI to have intractable pain due to A.A. My Bio is on the LWA web site I am one of the co-founders of LWA - Jon McHann. I wont take up this/your time now when you cand read it later if you want.
This is only a suggestion: Get in to see a nuerologist, If nuerologist cant help you, they normally get you to the right Doc. If you could find a pain specialist that has an anesthesiology background these guys really go for the pain rather than the others that concentrate on procedures like ESI's.
Unless it is a life or death situation PLEASE dont let anyone else cut on you again until you get things under control. I wish you well and please keep in touch.
Jon McHann
Co-Founder LWA
jon.mchann@gmail.com