Richard,
I've tried to email you twice and your email is bouncing. Please email kkovacik12@netzero.com and let me know if I may add your first email in edited form to our blog?
Thank you,
Karen Kovacik
Co-Founder
Saturday, April 18, 2009
Monday, April 13, 2009
Please welcome Marie
Please welcome another new member, Marie Rabbette.
Marie is from the United Kingdom and her email address is - marierabbette@yahoo.couk
Marie writes:
"I was diagnosed with AA in March 2008. I'm still in shock but would appreciate any information anyone may have on case law connected taking legal action against my doctor. Arachnoid cyst were identified in 1996 by my pain management consultant, who then chose not to tell me, I only found out following a referral to a neurologist last year. any help/guidance would be appreciated Regards, Marie"
If anyone has any input for Marie, please feel free to write to her or post a comment.
Thank you!
Marie is from the United Kingdom and her email address is - marierabbette@yahoo.couk
Marie writes:
"I was diagnosed with AA in March 2008. I'm still in shock but would appreciate any information anyone may have on case law connected taking legal action against my doctor. Arachnoid cyst were identified in 1996 by my pain management consultant, who then chose not to tell me, I only found out following a referral to a neurologist last year. any help/guidance would be appreciated Regards, Marie"
If anyone has any input for Marie, please feel free to write to her or post a comment.
Thank you!
Wednesday, April 8, 2009
Karen in Florida, Jon & Cindy Available
Greetings from Sunny Florida. Arrived at 11:30 pm last night, April 7.
I am thrilled to report that I navigated Denver International Airport with rolling luggage and heavy personal item (experimental stuff galore in it) with NO assistance!
Stood in the security line, unloaded, loaded my items, just like an "able bodied" person! Then made it to Atlanta, WALKED to the T concourse which was a hike again with NO assistance! Then to West Palm Beach and again walked with my carry on to baggage claim ... NO assistance, no traveling companion.
Folks, if that isn't indicative of improvement, I don't know what else you need? WOW
Jon and Cindy are on task while I play down here. You are all in my heart and I am "going for it" for each and every one of you.
Love & Blessings to ALL!
Karen Kovacik, Co-FounderLife with Arachnoiditis
I am thrilled to report that I navigated Denver International Airport with rolling luggage and heavy personal item (experimental stuff galore in it) with NO assistance!
Stood in the security line, unloaded, loaded my items, just like an "able bodied" person! Then made it to Atlanta, WALKED to the T concourse which was a hike again with NO assistance! Then to West Palm Beach and again walked with my carry on to baggage claim ... NO assistance, no traveling companion.
Folks, if that isn't indicative of improvement, I don't know what else you need? WOW
Jon and Cindy are on task while I play down here. You are all in my heart and I am "going for it" for each and every one of you.
Love & Blessings to ALL!
Karen Kovacik, Co-FounderLife with Arachnoiditis
Saturday, April 4, 2009
NO ... not selling N-Kinnase NOR making money from it
It would be nice if people would post their names when asking a question such as this one: Are we making money from N-Kinnase or selling it?? This was a post I felt needed to be addressed to keep this organization pure from its inception and to make clear this organization will not be run as others. Our sole mission is education, research, remission, support and that elusive cure.
At no time have I made a profit from N-Kinnase. In fact, it has been provided to me FREE OF CHARGE. Additionally, I have provided it to others that cannot afford it FREE.
Hopefully that answers this question without any further conversation required.
This organization is about finding a cure, not making money.
Karen Kovacik, Co-Founder
At no time have I made a profit from N-Kinnase. In fact, it has been provided to me FREE OF CHARGE. Additionally, I have provided it to others that cannot afford it FREE.
Hopefully that answers this question without any further conversation required.
This organization is about finding a cure, not making money.
Karen Kovacik, Co-Founder
Thursday, April 2, 2009
BIG NEWS - Nattokinase May Show Promise for Arachnoiditis!
This is the most exciting possibility yet! While we cannot "prove" N-Kinnase will work for everyone, it "seems" to be working for me. Having gone from being unable to balance in June 2008 to walking 6.7 miles and an active lifestyle today is truly remarkable.
Last Monday, I printed out research for Dr. Ralph Holsworth, a profibrinolytic enzyme researcher (hope I got that right). Just a few minutes ago, I came from Dr. Holsworth's office and he had done some research since Monday. He was EXCITED. His preliminary research "suggests" the profibrinolytics may show promise for arachnoiditis!! Dr. Holsworth has asked for my complete medical history including x-rays, MRI's, CT scans, etc. to put together formal documentation. If we can get a formally documented study, we are going to go places!
THIS IS EXCITING. If you want to give this a try, please go to our web site at www.lifewitharachnoiditis.com and look under the Provider section. We will be listing the research company involved with this product. I've been on it since November 2008 and have never felt better. Each week is better than the one before. It is not an instant fix. But if you could take a slice from June to Dec and then now, WOW. PLEASE TALK TO YOUR HEALTH CARE PROVIDER FIRST.
We are in preliminary stages of discussing how we can get health care providers involved in the actual research so others may take advantage of this process.
I am so encouraged! In my heart, I knew I was a different person from last summer, but I am now so excited if this can be helpful to others. Please let us hear from you!
Karen Kovacik
Co-Founder
Last Monday, I printed out research for Dr. Ralph Holsworth, a profibrinolytic enzyme researcher (hope I got that right). Just a few minutes ago, I came from Dr. Holsworth's office and he had done some research since Monday. He was EXCITED. His preliminary research "suggests" the profibrinolytics may show promise for arachnoiditis!! Dr. Holsworth has asked for my complete medical history including x-rays, MRI's, CT scans, etc. to put together formal documentation. If we can get a formally documented study, we are going to go places!
THIS IS EXCITING. If you want to give this a try, please go to our web site at www.lifewitharachnoiditis.com and look under the Provider section. We will be listing the research company involved with this product. I've been on it since November 2008 and have never felt better. Each week is better than the one before. It is not an instant fix. But if you could take a slice from June to Dec and then now, WOW. PLEASE TALK TO YOUR HEALTH CARE PROVIDER FIRST.
We are in preliminary stages of discussing how we can get health care providers involved in the actual research so others may take advantage of this process.
I am so encouraged! In my heart, I knew I was a different person from last summer, but I am now so excited if this can be helpful to others. Please let us hear from you!
Karen Kovacik
Co-Founder
New Members Posted Today
Please welcome new members posted to our web site Members page today, April 2, 2009: members added on April 2: Deb Green, Sarah MacLeod, Alan Weinraub, Anna Lyman.
We encourage you to have your friends, health care providers, family and others to join our site. As we organize for the efforts that lie ahead, we will need all the support we can find to educate the medical community, congress, and the public in general.
You may visit our web site at www.lifewitharachnoiditis.com and click on Members. People that are open to communication will have their emails highlighted with their information. There are others that just wish to be counted as members but have not decided to participate in email at this time.
Please note, many of the members that suffer from Arachnoiditis or similar disorders WELCOME any and all email of a supportive nature.
Jon McHann, one of our co-founders, is home from the hospital and would welcome emails of support.
Have a great day!
Karen Kovacik, Co-Founder
We encourage you to have your friends, health care providers, family and others to join our site. As we organize for the efforts that lie ahead, we will need all the support we can find to educate the medical community, congress, and the public in general.
You may visit our web site at www.lifewitharachnoiditis.com and click on Members. People that are open to communication will have their emails highlighted with their information. There are others that just wish to be counted as members but have not decided to participate in email at this time.
Please note, many of the members that suffer from Arachnoiditis or similar disorders WELCOME any and all email of a supportive nature.
Jon McHann, one of our co-founders, is home from the hospital and would welcome emails of support.
Have a great day!
Karen Kovacik, Co-Founder
Wednesday, April 1, 2009
Co-Founder Needs Support
One of our co-founders, Jon, just been released from the hospital. Jon was in 24 hrs.
We are now aware there are arachnoid membranes on the exterior of the optic nerves. There is strong evidence to support that once underway this disease has a large auto immune component.
Jon is home, but it has been very tough for him and his wife, Jooles. If you would like to send an email of support, please see the members page or email Jon at jon.mchann@gmail.com with your support.
God bless us all.
Karen, Co-Founder
We are now aware there are arachnoid membranes on the exterior of the optic nerves. There is strong evidence to support that once underway this disease has a large auto immune component.
Jon is home, but it has been very tough for him and his wife, Jooles. If you would like to send an email of support, please see the members page or email Jon at jon.mchann@gmail.com with your support.
God bless us all.
Karen, Co-Founder
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