Dr. Grace Brame of Delaware has a friend with Arachnoiditis. Dr. Brame's email address is grace@gracebrame.com
Grace says:
"My friend has ARACHNOIDITIS. After 9 years following a laminectomy, my friend finally received the diagnosis of Arachnoiditis. She is in constant, terrible pain, and her doctor will give her only 1/3 of the normal prescribed amount of controlled medicine. (He says it might hurt her heart. Another knowledgeable person says he does not want to be investigated by the government.)
WHAT ARE THE BEST MEDICINES OTHER THAN NARCOTICS that will not make her sleepy?
WHERE IS THE BEST PLACE/DOCTOR TO GO TO? - I am investigating Dr. J. Antonio Aldrete in Birmingham, AL who wrote the book: ARACHNOIDITIS: THE SILENT EPIDEMIC. I am also looking at the Cleveland Clinic, Duke University Medical Research, and Washington University in St. Louis. There is also a place in Maryland which I intend to find. We live in Wilmington, Delaware.
We are looking for a doctor who will tend her case comprehensively, speaking to or reading the reports of all those who are attempting to assist her with her 8 to 9 constant pain level.
MY DEEP THANKS to anyone who really can help.
I cannot afford to just chat because I must get my work done. (I am an academician, not a medical doctor.)
Blessing, GB"
LWA
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