Sherry Warner has registered with Life With Arachnoiditis. Sherry lives in Indiana. Her email address is gramms328@aol.com. She welcomes your contact.
Welcome, Sherry.
LWA
Monday, July 27, 2009
Saturday, July 25, 2009
Welcome Christine Poulin
We wish to welcome our new member, Christine Poulin. Christine would love to have anyone email her. Her email address is radiocorcoran@hotmail.com
Christine in Idaho and has been diagnosed with Adhesive Arachnoiditis.
Welcome, Christine.
LWA
Christine in Idaho and has been diagnosed with Adhesive Arachnoiditis.
Welcome, Christine.
LWA
Monday, July 20, 2009
Welcome Harriet Lyons
Please welcome our new member, Harriet Lyons from Pennsylvania. You may email Harriet at crowskid@comcast.net Harriet has a diagnosis of Failed Back Syndrome, Degenerative Disk Disease, and Arthritis.
Hariett says:
"I had my first lumbar laminectomy in Oct 2001 at age 37 due to a "fragmented" disc at what was called the L-5/L-6 level. I had to have another one at the same sight in April 2007. Admitted to rehab for a week for foot drop. Immediately after both surgeries, I had intense pain and burning sensation across my lower back and buttocks area. Bone scans were done and I was told it was arthritis. Pain only worsened and I was no longer able to wear a shoe on my right foot because of the pain it would cause to the outside of my foot.
Was sent to a Pain Management specialist who conducted a series of epidural injections, none of which relieved the pain.
In January 2009, I had a SPC implanted. The day after, I was in the ER complaining of a terrible burning sensation at the generator sight. It literally felt like my hip was on fire. I couldn't wear clothes, or let anything touch this area. In May, it had to be completely redone because it was not in the right position. I did get some relief in my legs, but nothing in my lower back. The pain is intense and non-stop.
Currently taking Oxycodone for the pain, which helps, but doesn't alleviate the pain. I have been having headaches, strange sensations in my legs and feet, swelling in my ankles, wetting myself and having what appears to be bouts of IBS, although I have never been diagnosed. I have weird sensations in my legs which I chalked up to RLS. Sometimes, it feels like there is water running down my legs, but there is nothing there.
Had to quit my job in May 2008 because I can neither sit, nor stand for any prolonged period of time and I couldn't concentrate because of the pain. Even now I forget what I was saying, forget words and conversations that had just taken place.
Just last night I ran across the diagnosis Arachnoiditis...this seems to answer EVERYTHING. Nobody has ever told me I have this, but it explains a lot of things that couldn't be explained before. I have a doctor's appointment at the end of the month and would like to confront him with this diagnosis, but don't want to sound like a fool.
Can anyone provide any assistance? Is there anyway to confirm that it is arachnoiditis without an MRI? Since I have the SPC, I can't have an MRI unless the SPC is removed. Would it be worth it to have this done?
Thank you for any help you may be able to provide."
Welcome to our group, Harriet.
LWA
Hariett says:
"I had my first lumbar laminectomy in Oct 2001 at age 37 due to a "fragmented" disc at what was called the L-5/L-6 level. I had to have another one at the same sight in April 2007. Admitted to rehab for a week for foot drop. Immediately after both surgeries, I had intense pain and burning sensation across my lower back and buttocks area. Bone scans were done and I was told it was arthritis. Pain only worsened and I was no longer able to wear a shoe on my right foot because of the pain it would cause to the outside of my foot.
Was sent to a Pain Management specialist who conducted a series of epidural injections, none of which relieved the pain.
In January 2009, I had a SPC implanted. The day after, I was in the ER complaining of a terrible burning sensation at the generator sight. It literally felt like my hip was on fire. I couldn't wear clothes, or let anything touch this area. In May, it had to be completely redone because it was not in the right position. I did get some relief in my legs, but nothing in my lower back. The pain is intense and non-stop.
Currently taking Oxycodone for the pain, which helps, but doesn't alleviate the pain. I have been having headaches, strange sensations in my legs and feet, swelling in my ankles, wetting myself and having what appears to be bouts of IBS, although I have never been diagnosed. I have weird sensations in my legs which I chalked up to RLS. Sometimes, it feels like there is water running down my legs, but there is nothing there.
Had to quit my job in May 2008 because I can neither sit, nor stand for any prolonged period of time and I couldn't concentrate because of the pain. Even now I forget what I was saying, forget words and conversations that had just taken place.
Just last night I ran across the diagnosis Arachnoiditis...this seems to answer EVERYTHING. Nobody has ever told me I have this, but it explains a lot of things that couldn't be explained before. I have a doctor's appointment at the end of the month and would like to confront him with this diagnosis, but don't want to sound like a fool.
Can anyone provide any assistance? Is there anyway to confirm that it is arachnoiditis without an MRI? Since I have the SPC, I can't have an MRI unless the SPC is removed. Would it be worth it to have this done?
Thank you for any help you may be able to provide."
Welcome to our group, Harriet.
LWA
Sunday, July 19, 2009
Please welcome Sandi Levi
Please join us in welcoming Sandi Levi to Life With Arachnoiditis. Sandy is located in Arizona and has a diagnosis of arachnoiditis. She welcomes your email.
Sandi says:
"I was wondering if there is a support group in Scottsdake AZ or the surrounding area."
From LWA: As we all know, support groups are virtually non existent. Please email Sandi in an effort to be of support. One day we hope support groups will be there for us all.
Welcome to LWA Sandi!
LWA
Sandi says:
"I was wondering if there is a support group in Scottsdake AZ or the surrounding area."
From LWA: As we all know, support groups are virtually non existent. Please email Sandi in an effort to be of support. One day we hope support groups will be there for us all.
Welcome to LWA Sandi!
LWA
Welcome Tammy Duffy!
Please welcome Tammy Duffy of Texas. Many of you may know Tammy! Tammy has a diagnosis of Arachnoiditis as well as Fibromyalgia. Her treating facility is The Texas Back Institute. She would love to hear from you and encourages you to email her.
Tammy says:
"Previous to my first back surgery in 2003, I endured a discogram and myleogram, where I believe the dye was injected incorrectly. After enduring increasing spine pain, I was finally diagnosed in 2005 with Arachnoiditis.
Currently I seek pain treatment from a doctor at the TX Back Institute. He has worked diligently with me to get my pain under control. Currently I use the Fentantyl patch, Lidocaine patches, Cymbalta, Ultram ER, and Vicodin to control the pain. For the most part, I have very little pain. However, I do still have some bad days. I have also found swiimming in the pool is a great form of exercise for people with Arachnoiditis and Fibromyalgia."
Welcome Tammy!
LWA
Tammy says:
"Previous to my first back surgery in 2003, I endured a discogram and myleogram, where I believe the dye was injected incorrectly. After enduring increasing spine pain, I was finally diagnosed in 2005 with Arachnoiditis.
Currently I seek pain treatment from a doctor at the TX Back Institute. He has worked diligently with me to get my pain under control. Currently I use the Fentantyl patch, Lidocaine patches, Cymbalta, Ultram ER, and Vicodin to control the pain. For the most part, I have very little pain. However, I do still have some bad days. I have also found swiimming in the pool is a great form of exercise for people with Arachnoiditis and Fibromyalgia."
Welcome Tammy!
LWA
Welcome Carla Spicker
Please welcome our new member, Carla Spicker. You may email Carla at cjspickler@comcast.net
Carla is from South Carolina and has a diagnosis of Arachnoiditis.
Welcome, Carla!
LWA
Carla is from South Carolina and has a diagnosis of Arachnoiditis.
Welcome, Carla!
LWA
Wednesday, July 15, 2009
Kovacik Progress Update
For those that are interested, there has been an update to Karen Kovacik's progress. Progress as of July 15, 2009 has been posted on her bio.
You may see her progress at www.lifewitharachnoiditis.com/cofounders.html and click through to Karen's bio. Her progress is posted on the third page of her bio.
You may see her progress at www.lifewitharachnoiditis.com/cofounders.html and click through to Karen's bio. Her progress is posted on the third page of her bio.
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