Please welcome Diana Couch of Arizona. Diana has Adhesive Arachnoiditis. She welcomes your email to her at ibde@cox.net.
Diana says:
"I have read alot about AA. But at this point I am having trimers in my right hand and arm. (as of today) Can you tell me if this is part of my AA. I have AA from l1 to s1 as of 2/2010 Has not changed sence 4/2009
Please tell me more about camp!!!!!!!!!!"
From LWA: Diana, Camp is not associated with LWA. Please go to www.arachnoiditisusa.com or contact Karen at kkovacik12@netzero.com
Saturday, June 19, 2010
Welcome Kathryn Fisher
Please welcome Kathryn Fisher of the UK. Kathryn has Arachnoiditis. She welcomes your email to her at kkdfisher@googlemail.com
Welcome Peter Rutkin
Please welcome Peter Rutkin of Queensland, Australia. Peter has Arachnoiditis. He welcomes your email to him at petrtkn@spiderweb.com.au
Peter says:
"operation may 1992 at L4/5 .I had lain in hospital four days my specialist forgot me. given myelogram and operation,( discectomy and laminectomy).Have'cauda equina syndrome' (damaged cord at L4/5). Had 2nd myelgm 1992. 1994 tightness calves in shopping centres . baclofen to reduce the tightness and used stretches of my calves.Over years tightness spread down to my ankles. Have backlofen pump. Take lyrica, alopam & painkillers,fentanyl patch 25mcg/hr,dothep.Pain real bad now. regards peter (intrathecal pump"
Peter says:
"operation may 1992 at L4/5 .I had lain in hospital four days my specialist forgot me. given myelogram and operation,( discectomy and laminectomy).Have'cauda equina syndrome' (damaged cord at L4/5). Had 2nd myelgm 1992. 1994 tightness calves in shopping centres . baclofen to reduce the tightness and used stretches of my calves.Over years tightness spread down to my ankles. Have backlofen pump. Take lyrica, alopam & painkillers,fentanyl patch 25mcg/hr,dothep.Pain real bad now. regards peter (intrathecal pump"
Welcome Raymond Frizzell
Please welcome Raymond Frizzell of Florida. Raymond has Adhesive Arachnoiditis. He welcomes your email at paula5o2@aol.com.
Welcome Linda Gall
Please welcome Linda Gall of Texas. Linda has Arachnoiditis. She welcomes your email to her at royandlinda@gvtc.com.
Linda says:
"I have recently been diagnosed with Arachnoiditis. I am needing further information than I have read...specifically, what can I do myself to alleviate or minimize the pain? I just need information, and that is difficult to get."
Linda says:
"I have recently been diagnosed with Arachnoiditis. I am needing further information than I have read...specifically, what can I do myself to alleviate or minimize the pain? I just need information, and that is difficult to get."
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